For the past 20 weeks Simon has had chemo every two weeks, we have settled into the battle rhythm of our current situation and how we manage the side effects, treatment regimes etc.
The Easter break was something for us we looked forward to, it fitted in with Simons treatments and so we knew there were windows of opportunities of doing “stuff”, in fact I made a list of things we could get done in the garden, as the weekend got closer the weather forecast improved and so we had great expectations…….. however cancer always has a way of kicking us.
Thursday Simon had trouble with his stoma, not in a output way but he had developed an ulcer. We saw the lovely stoma care ladies at the hospital who in no time were able to give Simon dressings and treatment.
Friday Simon was not quite himself but it was bloods and Picc flush day, please note Good Friday (Bank Holiday for most of us) and the chemo team were in for a full on busy day. Simon was from first thing showing signs of being unwell. Fatigue didn’t just affect him it overwhelmed him, in fact he slept for a majority of the day. He didn’t want to eat (massive alarm bells in our house when we go off food!), Saturday the situation didn’t improve and to be honest we had frank discussions on getting advice from the hospital, in the end Simon agreed to call the following day if he did not improve.
Calling the hospital for help is something we always think twice about, however we need to make sure we are sensible with Simons condition. When he called they said they wanted him admitted. This all suddenly started to escalate.
So off we went again to Derriford, when Simon got out the car he actually didn’t think he could walk from the car to the ward, for the first time he asked for a wheel chair, then bit by bit we walked in.
Once we were in Brent everything began to dawn on us, and high temp, high BP, raised pulse ….. treatment for sepsis began. This is an on going story and currently the thought is this may be from his Picc line but this is still to be established.
So yet again I’ve had to leave my Cowlsy in the hands of hospital staff and once again this disease has thrown us a curve ball.
All sorts of emotions I am feeling tonight. I’m angry our plans were changed, I’m jealous that the world and his proverbial wife has been out in this amazing weather having fun and we have been in hospital (with, I have to say a lot of other people). We don’t do the “it’s not fair” conversation but however life’s a bugger at times.
So that’s our weekend so far, this is to be continued……..
onward and upwards Mr C.