Here we go again……

Sorry it’s taken a few days to get back to you, but here goes.

It’s always a concern when the oncologist starts a conversation with the phrase “well, it’s more complicated than we would have wanted it to be” trying not to go into panic mode we pinned our ears back to listen. So here is the picture we have been given, three lesions in Simons lungs, lymph node in his neck and a rather menacing thing in his abdomen.

So where do we go from here, we have a plan, firstly Simon needs a Picc line fitted, this will look something like this:

With this in place Simon will have 6 cycles of chemo over the next 12 weeks, he is having 5FU (the FU part not wasted on our current mood) or otherwise known as FOLFIRI.

Once this is completed a re-scan and go from there with ablation on the lung lesions still on the table at this point.

They are also retesting the original tumour to add antibody therapy to the chemo cocktail.

It’s all very simple to rattle off the treatment plan etc but DO NOT underestimate the effect this has had on us. Utter devastation is an understatement, we had planned so much which has currently stalled. However, fortunately for Simon he has an obsession with hats which will come in handy over the following weeks and months.

So the blog is going to be more active than it has been, it’s going to be a place where we can tell you what happening, how we are and for me personally a place that I can share my feelings quite freely.

Let’s get a few things clear, we are not giving up, our dark humour is ever present and Christmas has certainly not been cancelled.

Dear Cancer, we are taking the fight to you and are ready.

Onwards and upwards, TTFN