Here we go again……

Sorry it’s taken a few days to get back to you, but here goes.

It’s always a concern when the oncologist starts a conversation with the phrase “well, it’s more complicated than we would have wanted it to be” trying not to go into panic mode we pinned our ears back to listen. So here is the picture we have been given, three lesions in Simons lungs, lymph node in his neck and a rather menacing thing in his abdomen.

So where do we go from here, we have a plan, firstly Simon needs a Picc line fitted, this will look something like this:

With this in place Simon will have 6 cycles of chemo over the next 12 weeks, he is having 5FU (the FU part not wasted on our current mood) or otherwise known as FOLFIRI.

Once this is completed a re-scan and go from there with ablation on the lung lesions still on the table at this point.

They are also retesting the original tumour to add antibody therapy to the chemo cocktail.

It’s all very simple to rattle off the treatment plan etc but DO NOT underestimate the effect this has had on us. Utter devastation is an understatement, we had planned so much which has currently stalled. However, fortunately for Simon he has an obsession with hats which will come in handy over the following weeks and months.

So the blog is going to be more active than it has been, it’s going to be a place where we can tell you what happening, how we are and for me personally a place that I can share my feelings quite freely.

Let’s get a few things clear, we are not giving up, our dark humour is ever present and Christmas has certainly not been cancelled.

Dear Cancer, we are taking the fight to you and are ready.

Onwards and upwards, TTFN


The Show must go on…..


Picc Lines, Pumps and paraphernalia……


  1. Pauline williams

    Your amazing fortitude and the fact that you can both stand up and tell cancer to go ‘fuck itself ‘is truly inspirational. Love always. Xxx

  2. HoneyC

    They donโ€™t throw money at cases that they donโ€™t think can have a good outcome !!!!

    Onwards and upwards Mr & Mrs Cowls – and Simon has always looked great in hats ๐ŸŽฉ ๐Ÿงข ๐Ÿค ๐Ÿ‘ท๐Ÿพโ€โ™‚๏ธ๐Ÿ‘ณ๐Ÿปโ€โ™‚๏ธ๐Ÿ‘ฎ๐Ÿปโ€โ™‚๏ธ๐Ÿ‘จโ€๐Ÿณ๐Ÿ‘จ๐Ÿปโ€๐ŸŽ“๐Ÿ‘จ๐Ÿปโ€๐ŸŽจ๐ŸŽ…๐Ÿป๐Ÿง™๐Ÿปโ€โ™‚๏ธโ›‘๐Ÿ‘‘๐Ÿ‘’ grrrrrr a bald man in a hat ๐Ÿ˜œ๐Ÿ˜œ๐Ÿ˜œ ooops think that shouldโ€™ve been for my husband lol xxx

    Thinking of you both always xx

  3. Mel Gwynn

    That was hard to read but you two separately are amazing and together a force to be reckoned with. Watch out cancer!!!! Big hugs to you both. Xcx

  4. Jennie Wills

    Stay positive it’s the way to go.
    Thinking and praying for you both often
    Jen xxx

  5. Gill

    I started out with a PICC line and FOLFIRI for 18 months. It wasn’t too bad except for mouth ulcers, mucousitis and fatigue. Oh and hair loss. Eventually it stopped working and I went on to FOLFOX for 6 mths but the tumours grew by 30%. I am now on Lonsurf, which is my final option.

    Keep that dark sense of humour. It’ll sustain you throughout.

  6. Steve and Marie Boot

    My Poor IT Skills mean I have only just seen this post – my bad. As I said in my earlier text Simon, you will still look Suave and Sophisticated with no hair! This will mean a small delay in our planned celebrations but I am looking forward more than ever to our drinks, looking back at this! You have been, and continue to be inspirational. Now, go kick this monster’s arse!

    Steve and Marie xxxx

  7. Richard

    Great blog, my first proper review read, keep up with the fight and the humour.. Is there any alcohol allowance in this treatment plan? ๐Ÿป?

  8. Paula Reid

    Much love to you both. Simon I look forward to seeing some very snazzy head gear. Battle knickers at the ready and if you donโ€™t have any new ones, give me your address and I post some, oh and Ali a bottle of wine for you. xxx

  9. Karen

    Well, you two couldnโ€™t be a stronger team to deal with this. Keep your focus on that light at the end of the tunnel – your just going round the last bend! Am absolutely bloody furious with sodding cancer for you both. GET YOUR THERMAL BATTLE PANTS ON MR & MRS C! Youโ€™ve got an army of well wishers behind you! Xxxxx

    • Ali

      Thank you Karen, we certainly didnโ€™t want to be going through this again but we will bloody fight it! Thermal battle pants ready to go

  10. Graham Joslin

    Very best wishes to you both! I donโ€™t know you Ali but have known Simon through work for nearly 20 years an absolute pleasure to work with. My Son had a Brian Tumour diagnosed 5 years ago. He is doing really well and we recently had a clear MRI. Simon is also an inspiration to us all and I know with you at his side he will beat this!! Keep strong wil be thinking of you and sending positive thoughts. Graham x

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